Distinguished Professor Sir Richard Faull is the patron of the Auckland Huntington’s Disease Association. He is also a Distinguished Professor of Anatomy and the Director of the Centre for Brain Research at the University of Auckland.
We are grateful for Sir Richard Faull’s continuous support.
“My name is Janine Butters I have been involved with the AK HDA for many years as a committee member and currently as the Chair.
I have family involvement with HD so in light of this I am committed to helping and supporting the HD community in finding a cure for this devastating disease. My other interests include singing in a community choir, dancing (not currently) reading a good book, riding my bike (an E bike is calling me) and travelling. I work as a merchandiser which keeps me fit and active and enjoy meeting and helping people.”
Dr Emma Burnip is the Secretary of HDA Auckland and has been a committee member for more than two years.
Emma qualified as Speech Language Therapist in the UK eleven years ago. She went on to specialise in adult neurology, particularly supporting individuals with neurodegenerative conditions such as dementia, Parkinson's disease, and Huntington's disease. Emma’s family has been touched by HD, and with first-hand experience of watching loved ones change and seeing many families struggle with a lack of treatment options, she was inspired to help people with swallowing and communication difficulties with HD. So, in 2017 she moved to New Zealand to undertake research in Speech Language Sciences at the University of Canterbury. She recently completed her PhD in swallowing assessment and rehabilitation in individuals with Huntington’s disease and is dedicated to raising awareness of swallowing treatment for people with HD. Emma is now based in the beautiful Queenstown-Lakes District, but continues to support HDA Auckland remotely, maintains strong relationships and travels to key events when possible.
Dr Amy McCaughey-Chapman is a Post-doctoral Research Fellow at the University of Auckland’s Centre for Brain Research.
Amy’s research is focused on using a technology called cell reprogramming to generate live human brain cells for the study of neurological disorders and development of novel therapeutic strategies. Among the multiple projects that Amy is involved in, one exciting one is a large Huntington’s disease project in which on one hand they are testing a novel cell-transplantation strategy and in another, they are investigating novel therapeutic targets for drug development. With Amy’s active involvement in Huntington’s disease research, she was given the opportunity to join the HDA committee in 2019.
Amy is delighted to be part of this committee and its links to the HD community in NZ.